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A UK-based charity which helps individuals and families affected by Glycogen Storage Disease by putting individuals in contact, providing data and assist, publishing a magazine and holding conferences, workshops, programs and family events. IamGSD - International Association for Muscle Glycogen Storage Disease. A non-revenue, Healthy Flow Blood pills patient-led worldwide group encouraging efforts by research and medical professionals, Healthy Flow Blood formula nationwide support teams and individual patients worldwide. IPA - International Pompe Association. A non-profit, Healthy Flow Blood formula federation of Pompe disease patient's groups world-extensive. It seeks to coordinate actions and share experience and information between different teams. EUROMAC - EUROMAC is a European registry of patients affected by McArdle Disease and Healthy Flow Blood USA other uncommon neuromuscular glycogenoses. CoRDS - Coordination of Rare Diseases at Sanford (CoRDS) is a centralized worldwide patient registry for all uncommon diseases. They work with affected person advocacy teams, healthy flow blood formula including IamGSD, people and Healthy Flow Blood supplement researchers. CORD - Canadian Organization for Rare Disorders (CORD) is a Canadian national network for organizations representing all these with uncommon disorders. CORD gives a strong widespread voice to advocate for well being policy and a healthcare system that works for these with uncommon disorders. NORD - National Organization for Rare Disorders (NORD) is an American national non-revenue affected person advocacy group that is devoted to people with uncommon diseases and the organizations that serve them. EURODIS - Rare Diseases Europe (EURODIS) is a novel, Healthy Flow Blood natural support non-profit alliance of over seven-hundred uncommon illness affected person organizations throughout Europe that work collectively to enhance the lives of the 30 million folks dwelling with a uncommon disease in Europe.

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